PDA Society
The PDA Society is the only specialist PDA charity in the UK. They are a small team, and all of them have a personal connection with PDA.
Their goal is to try and make life better for PDA people and their families – they believe that happy, autonomous lives are possible. They have a strong commitment to research that underpins every step they take towards improving understanding, support and outcomes for PDA people in the future.
They do this by:
- Raising awareness of PDA and providing high quality, trustworthy information.
- Providing training to parents and professionals to help them understand how to support PDA people, and to build safe, supportive connections.
- Offering tailored support to PDA people and their families through our enquiry line service, which is entirely staffed by PDA people or their carers.
- Consulting with and mobilising our community to influence positive change for PDA people.
Position Statement Pathological Demand Avoidance Norfolk/Suffolk/Waveney
This document aims to improve the understanding of ‘Pathological Demand Avoidance’ (PDA), to ensure everyone in Norfolk, Suffolk and Waveney is clear about what is meant by PDA.
This Position Statement has been co-designed with people with lived experience.