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On this page, you will find a list of current co-production and engagement opportunities that you can get involved with to help shape and develop services for Autistic people.

To be kept up-to-date with future co-production and engagement opportunities please click here to register your interest

Current co-production and engagement opportunities

Online

Exploring the experiences of ageing in older autistic adults

Thrive Autism is a new charity formed by six individuals who want to provide Norfolk with a state-of-the-art Autism Centre . This will be a bespoke new build and will be located with good communication and transport links.

Whilst the trustees have a vision it is very important that you have your say what you want in the building. The plan is to make the building as Autism friendly as we can. It will be open to all young people aged 0-25 , parents’ siblings ,carers and those that provide support around ,speech etc

Because of the complexity of autism, it will also help those with its associated disabilities.

The building will be very much for leisure creating a safe ,secure and friendly environment but will also cover support, training, and employment as well as any suggestions from yourselves.

Below is a link to a 5-minute survey to help all those involved in this project to deliver what’s needed in the County and for you.

Survey Link: https://forms.office.com/e/j28dgW6DuA
Closing Date: 31st December 2024

Online

Exploring the experiences of ageing in older autistic adults

This project examines the experiences of ageing as an older autistic adult. Later life is a period commonly associated with major life changes in routine, functioning and health. As such, ageing can present opportunities but also challenges for individuals, and there is little research that looks at the experience of what it is like to age as an autistic adult. It is important to gain a greater understanding of the unique experiences and needs of older autistic adults, so that their needs might be better met.

Inclusion Criteria
  • Are over 50 years old and either have a formal diagnosis or self-identify as being autistic
  • Reside in the UK
  • Do not have a diagnosis of an intellectual disability
If you are interested in taking part please email Oyenike.Oyeleye.2022@live.rhul.ac.uk
 
Opportunity open until 31st December 2024

Online

Parents experience of their young person transition from CAMHS to Adult Mentla Health Services

I would like to invite you to take part in my research project, which aims to understand how parents of autistic young adults experience the process of their child transitioning from child and adolescent mental health services (CAMHS) to adult mental health services (AMHS).
 
Inclusion Criteria
  • Being a parent of at least one autistic young adult.
  • The young adult has begun, attempted or completed the transition directly from CAMHS to AMHS within the last 10 years.
  • The young adult must have a formal diagnosis of autism.
  • Living in England.

If you are interested in taking part please email charlotte.roche.2022@live.rhul.ac.uk

Opportunity open until 31st December 2024

Online

Online Survey on Age-Related Differences in Physical Activity Levels, Physical Activity Preferences, Mental Health, and Quality of Life among Autistic Adults

Researchers at the University of Greenwich and King’s College London are looking for volunteers to take part in a new research study, which aims to identify three things: (1) do physical activity levels and mental health/ well-being vary with age in autistic adults? (2) Is there a relationship between physical activity levels and mental health/ well-being in autistic adults? And (3) If there is a relationship between physical activity and mental health, do autonomic nervous system function and sensory processing help to explain this relationship in autistic adults?

We are looking for participants, aged 18-65, with a clinical diagnosis of autism, who are fluent in English and have not had an acute or chronic illness or injury within the past 3 months that would cause a medical professional to advise limited physical activity to take part in our study. 

Survey open until 31st December 2024

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