The DSWG continues to drive forward improvements for autistic people in Norfolk. At the March 2025 meeting, the group focused on key challenges raised by autistic individuals and agreed on several important actions:

🔍 Key Priorities and Actions

• Reasonable Adjustments in Healthcare
  Autistic people reported GPs aren’t consistently applying the legally required SNOMED codes (reasonable adjustment flags). A focused action is underway to ensure this code is added at diagnosis, with potential integration into professional training.

• Patient Choice Awareness
  Some patients are unaware of their right to choose providers for autism assessments. The group is working to share assessment data and improve information given to both patients and practitioners.

• Improving Complaints Processes
  Complaints are often difficult for autistic individuals to raise and resolve. A focus group will be co-designed to explore experiences and develop solutions.

• Clarifying the Group’s Purpose
  As the group has been active since 2018 without formal terms of reference, a review of its role and remit is being planned to ensure continued effectiveness.

• Private Adult Autism Diagnosis Guide
  A new guide is being developed for those seeking a private autism diagnosis, addressing concerns that some GPs do not accept private assessments. The guide will explain options, processes, costs, and questions to ask providers.

🛠️ Work in Progress

• Co-produced PDA (Pathological Demand Avoidance) statement has been approved and shared publicly.
• Updates are ongoing to support guides for autistic adults and children in Norfolk and Waveney.
• The team is reviewing draft pages for a new Neurodevelopmental Digital Platform.
• The Norfolk All Age Autism Strategy (2024–2029) is in motion, with plans being shared to support year-one delivery.

The group reviewed feedback from the November Norfolk Autism Partnership Board meeting, recommending a RAG rating format for the Year One Plan progress document, with colours indicating different levels of progress, though alternatives like a rainbow spectrum were also discussed.

A timetable for updates and meetings was shared.

It was agreed that the group would update the Board in January on Year One achievements and planning for Year Two.

They will revise communication processes, including timely updates and reminders, and revisit the BRAG system at the next meeting.

Updated 15/01/2025